Tag: webmd portal

29 February is World Rare Disease Day. Up to 36 million people in the EU are living with a rare disease. Victor, a nine-year-old boy from Bucharest, Romania, is one of them. He was born with a rare condition known as Coffin-Lowry Syndrome. It took three years and tests in six countries to identify the cause of Victor’s severe psychomotor delays: a tiny mutation in one his genes. For more than 20 years, the EU has made the fight against rare diseases a priority. Our goal is to improve the diagnosis and treatment of patients through cooperation and pooling of…

Jakarta (ANTARA) – Director General of Disease Prevention and Control at the Health Ministry Maxi Rein Rondonuwu stated that education, particularly spread by media, is vital to ensure that people can be informed about maintaining their hearing health. Rondonuwu emphasized that 60 percent of the causes of hearing loss, such as infections and loud places, can be managed or prevented. “The most important is how we promote to improve public awareness while also preventing hearing loss through effective early detection measures,” he noted at a press conference hosted by the Health Ministry here on Friday. He remarked that a person…